Coastal Haiti Mission Newsletter
A True Story of Gigantic Possibilities
By Ken Johansson, Coastal Haiti Mission (CHM) Newsletter editor
This story begins on March 16, 2009. This is the birth date of a boy named Steventz Santil. Steventz was born in Northern Haiti. Although Steventz was unknown to us and to most of the people in Haiti, he suffered some major setbacks in his young life. First, Steventz suffered from an illness that was unknown to any of the people in his immediate family or relatives. In fact the medical condition he suffered from was unknown to the physicians that cared for him. The illness that Steventz suffered from was finally identified in mid 2018.
Steventz has a brother about one half his age, who appeared to be suffering from the same mystery illness. Steventz suffered significant pain in his young life, finally used a long stick to lean on when he tried to walk.
This mysterious illness was not the only trauma that these boys suffered. Each of the boys had the same mother, but different fathers, who have disappeared and their whereabouts is unknown. Then, their mother died. Providentially, their aunt, who is the twin sister of their mother, has welcomed them into her home. She is raising Steventz and Louventz, along with their two older sisters. Recently this aunt was married, so now there is a father image in their home.
Additionally, the boys have their community, consisting of their pastor, their church and their school.
It was May 30, 2018 when I first became aware that there was a Steventz Santil. It was on this date that I received some photos of Steventz along with an email describing his situation.
Pastor Coty Writes about the boys, Continuing the Story:
I always feel glad to talk about these two boys, Steventz and Louventz. They are two kids from Cahess. They also are part of our school and our church. Both of them are suffering from hemophilia.
Even though, Steventz’s knee is already swollen, the medicine that he is taking is helping his knee from getting more swollen. It appears that Louventz’ knee has started to swell also.
Steventz is 10 and Louventz is 6 years old. I cannot forget the day that Steventz got my attention. He has been sick since he was little, but nobody knew what he was suffering from.
That day in school, he kept my attention, because he was using a stick to help him walk. I was going to take a group picture for the class. I called everybody outside for the picture, but Steventz stayed inside. When I asked him why, he said his leg was hurting so bad, he did not want to walk on it. Steventz is a kind little boy. I knew he would have come out if he was not hurting so bad.
I had to carry him out. He made me cry that day, because I imagined how much he would like to be like every other kid in the class. I asked God what to do, and the one thing I felt like doing, was exactly what I did. I took a picture of Steventz. I sent that picture to Coastal Haiti Mission, via brother Ken Johansson, who immediately published it in the CHM Newsletter. As his situation touched my heart, brother Ken’s writing, along with the pictures, touched the hearts of many of God’s people. They used their knowledge to diagnose that Steventz was suffering from hemophilia. Because Steventz’ brother Louventz, was starting to show the same symptoms, he was also diagnosed with hemophilia.
Now, both of them are receiving medication to control their illness.
I never find the right words to thank everyone who has contributed, and continues to contribute, in helping these two children.
I am also very grateful that the help given Steventz and Louventz, will extend to many other people who suffer from hemophilia in the Country of Haiti.
God bless you.
Pastor Coty, on the ground of Cahess.
Steventz with his walking stick.
Brothers, Louventz and Steventz
This is the Detailed Account of How it all Happened.
We first learned of the mystery illness that Steventz and Louventz suffered from, in an email from Pastor Coty.
This is Steventz Saintil. He is in the fourth grade. He has one knee bigger than his other one. Most of the time, he comes to school using a stick to walk. He always complains of pain. His parents are not financially able to take him to a big hospital. He has a little brother who has the same kind of sickness. Some days, his leg is almost normal, but most of the time he suffers from bad pain and the leg is very swollen.
When the CHM Newsletter was published, it almost instantly, started a chain of events, that continue to this day. It immediately captured the attention of June Levensohn who is a registered nurse, living in Vermont. This lady is a special friend to the Haitian people. She has devoted much of her life and her resources, in helping the people of Haiti. She has established schools that include vegetable gardens. Additionally she has assisted many students in their educational pursuits.
June forwarded the newsletter announcement to Dr. Ted Kaplan, who is a pediatrician in Orlando, Florida and, who also heads the Cap Hatien Health Network, a consortium of health care professionals, located both in the USA and in Haiti. Dr Ted immediately suspected hemophilia, and forwarded the newsletter information to Laurie Kelley, located in Georgetown, Massachusetts. Laurie has a son who has hemophilia. Laurie has devoted her life to helping people who have this disease. She has authored books covering a gamut of subjects for individuals who suffer from this dread disease, and also for their families, who must live with this disease.
Laurie also created a business to assist people who have this disease. She also created a charity to assist hemophilia sufferers in developing countries. Laurie had previously been to Northern Haiti, and knew of two other boys, who were suffering from hemophilia.
That day, June 8, 2018 at least eight emails crisscrossed the United States to diagnose and begin treatment for Steventz.
The problem was how to get a blood sample to Dr. David Andrews, at the University of Miami for analysis. Dr. David has volunteered in the past, to do the needed blood analysis for other people.
This group of people hatched a plan to get the needed blood sample to Dr David. Pastor Coty would bring Steventz to Dr Ted’s hotel on the day he would leave to return to the United States. Dr Ted would draw Steventz blood, and then hand carry the sample on the return trip to Florida, handing the blood sample off to Dr David at the Miami Airport.
The analysis was conclusive. Steventz indeed had hemophilia.
The next step was to get blood Factor to Steventz. Laurie and her associates provided donated Factor and arranged to air freight it to Pastor Coty.
Pastor Coty’s brother, Dr Aly Joseph became the physician in charge of administering the Factor to Steventz.
The next time Dr Ted was in Cap Hatien, the same approach was used to bring a sample of Louventz’s blood back to Dr David.
The analysis proved that Louventz also suffers from hemophilia.
Now, Dr Aly has two patients with hemophilia to care for. He is using Factor that is provided by the charity Laurie created, named Save One Life.
The Story Doesn’t End
As mentioned previously, Laurie has created a nonprofit organization called Save One Life, to bring help to people suffering from hemophilia, in developing countries. This is a wonderful and very active charity, serving people across the world, who have very little of this world’s goods.
You can get a firsthand view of this charity and the people it serves, by going to: www.saveonelife.net This will be a very enriching experience.
Save One Life has invited CHM, and we have accepted the invitation, to become a Partner with Save One Life. Briefly, our responsibilities will be to monitor, care for, report on, and direct if needed, the well being of Steventz and Louventz. Save One Life will provide resources, to assist us in carrying out our responsibilities. CHM may, in the future, become involved with the care of other children and youth suffering from hemophilia, who live in the region around the City of Cap Hatien.
The Story Will Continue On Indefinitely
Partners in Health (PIH) is a Boston based nonprofit health care organization founded in 1987. This organization has made enormous contributions to healthcare in some of the poorest countries in the world. PIH was started in Haiti and operates numerous hospitals there, including a large teaching hospital. This hospital is named Hopital Universitaire Mirebalais (HUM).
A brief paragraph cannot begin to describe the huge accomplishments that PIH has made to world healthcare. It is worthy of an Internet search, to adequately begin to summarize, their contribution. There will be no shortage of information on the Internet.
June Levensohn, who sent the information about Steventz to Dr Ted Kaplan, also referred Laurie Kelley to Dr Gottlieb, the CEO at that time, of PIH. This allowed Laurie to present her plan for Haiti, along with her history and credentials to Dr Gottlieb. Dr Gottlieb referred Laurie to Marc Julmisse, Chief Nursing Officer, of HUM.
This began the collaboration between PIH in Haiti, and Laurie Kelley representing Save One Life, along with others in the medical community, to bring hemophilia care to this hospital.
The next step, once this first location for hemophilia care is established, is to invite The World Federation of Hemophilia, to begin operating in Haiti.
Once this happens, the World Federation will bring to bear, its “world class expertise” in treating and training the medical community for all of Haiti.
We at Coastal Haiti Mission, are absolutely thrilled, to have a small part in the overall plan, to bring hemophilia care to the Country of Haiti.
Food for the Needy Program
Pastor Coty Writes
People may ask, what is in the black bags (see photo below). I do have the answer. It is rice and oil.
This time, we did it differently. We did not only give food to the people on our program list. Instead, we gave food to many more families, because we know that the cost of living is so high in Cahess. So, this past Sunday, after church, we had everyone stay after the service. We were able to hand out 120 kits of food to 120 families.
We also did something else that we have never done before.
After getting the kits of food from Nana, they went straight to the church office to receive the second blessing. We supplied each family, $3.00 US dollars in cash but converted to Haitian money.
The people were more than happy that Sunday.
I have to witness, that we could do all of this, not because of our efforts, but because of other people with good hearts, who serve the Lord.
On behalf of all the people in Cahess, and in our name, Coty and Nana, I thank you, the supporters of CHM, very very much. With your support, you bless many people.
A food gift for 120 families
School Lunch Program
You provided school lunch for all the school days in the month of December.
Thank you, CHM Family and Friends for your continuing investment in these children.
The 2019 Cahess Christmas Party
The 2019 Christmas Party was a huge success. We will report on this party with many photos, in the January 2020 CHM Newsletter.
Hebrews 6: 10
God is not unjust; he will not forget your work and the love you have shown him as you have helped his people and continue to help them.
Thank you family and friends of Coastal Haiti Mission, for all that you do to help the people in Cahess, Haiti. You are making a huge difference for these people.
Please remember, that CHM must continue to send our monthly commitment of $600 to carry on the ongoing CHM ministry in Cahess.
If you desire to help, please send your tax deductable check to our address and tell us how you want us to use your donation:
Coastal Haiti Mission
C/O Constance Goddard
3048 Spring Fancy Lane
Indian Trail, NC 28079
For tax deductable “online donations”, please use our PayPal service. Also please designate how you want us to use your donation:
May the Lord our God, who knows your heart and sees your actions, grant you great joy as you serve Him.
Connie, Esther, Pastor Coty and Ken are very grateful for your sacrifice.
Ken Johansson CHM Newsletter Editor